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Tuesday, March 14, 2017

Be sure to stop by and like the official Lippy Legs & All Facebook page


Please drop by the official FB page for my June 10, 2017, book release, LIPPY LEGS & ALL – MY LIFE WITH LIPEDEMA.

On the official FB page, I will share excerpts from my book in addition to articles, blog posts, infographics, and other information about Lipedema (also known as Lipoedema) to spread awareness about this genetic (and currently incurable) disease.

The information I share on the page is essential knowledge for women who suspect they might have Lipedema or women who have already been diagnosed with the disease and are looking to discuss with others how it affects their lives on many levels – physical, mental, emotional, and spiritual.


I look forward to having a dialogue with others about Lipedema and hope you will feel comfortable sharing comments, viewpoints, personal stories and other related information on this page. Don't be afraid to ask questions, either. That's how all of us learn together!

I hope you will join me there. This is a cause I am passionate about because there are women who may have no idea they have Lipedema. It's imperative that more people become aware and educated about this condition because one of your loved ones may need treatment for this disease.




Without health insurance through the ACA, managing my Lipedema will become more difficult

Here is a before and after shot of how my legs looked prior to having compression garments and Manual Lymph Drainage (MLD) at the physical therapy dept. at Penrose-St. Francis Hospital. My physical therapist is Lil and she's been working with Lipedema patients for over 20 years.

Unfortunately, with the impending rollback of the Affordable Care Act, it's likely that I will lose my health insurance and will no longer be able to have this physical therapy, meaning that my Lipedema will continue to progress. 

I was so happy to get treatment and to think I may be without it again worries me. It took me years to get a diagnosis and I was so relieved that I could begin treatment. But now it feels like soon I'll be back to square one again. 

Before MLD and compression stockings
After MLD and compression stockings


Sunday, March 12, 2017

Coming June 10, 2017: Lippy Legs & All – My Life with Lipedema

Scheduled for June 10, 2017 release.
You can pre-order your copy from the publisher here:
https://www.smashwords.com/books/view/710509

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For years, I watched as my calves legs grew larger, bruised easily, and became more painful. Even bumping against a chair or the corner of a wall would send shockwaves of pain through my calves and leave me with huge bluish-purple bruises.

I knew something was wrong, but what could it be? I thought it was a simple case of edema or general swelling, but keeping my legs elevated and taking diuretic pills had no effect. In fact, they only became worse.

In 2014, after several attempts to locate a physician who would help me figure out what was wrong, I was lucky enough to get a diagnosis. I had Lipedema, a genetic disease I'd never heard of before. It's a mystery disease with no known cure thus far.

Not widely discussed, Lipedema is rare and only affects about 11% of women. Few doctors are able to recognize the symptoms, nor have they been exposed to information about the condition and how it relates to the all-important lymphatic system.

LIPPY LEGS & ALL is the story of my life (thus far) with Lipedema. I'll discuss, in detail, what I've learned about the disease, how it's permanently changed me both physically and mentally, and why I'm determined to bring awareness to this condition so women who may suffer from Lipedema can get the essential diagnosis and treatment they deserve.

Without a proper diagnosis, treatment, and rehabilitation, a Lipedema sufferer can face a bleak future of wheelchair-bound immobility or, worse yet, amputation of their limbs. No woman deserves either of those things; if I can cast a wider spotlight on Lipedema through the publication of this book, I will.


Wednesday, September 28, 2016

Lipedema is NOT the same as being overweight or obese



As I told my friend, Jade, who shared this on her wall:

I just want to mention that while there are obese patients, there are those who have Lipoedema (Lipedema), like I do, which is a rare, incurable disease that is genetic in nature. Not everyone who is overweight is merely obese.

With Lipoedema, it does not matter how much you diet or exercise...it's NOT the same as obesity. I was diagnosed in 2014 and the only thing I can do is manage it with Manual Lymph Drainage (MLD) therapy and compression garments...until they find a cure, that is.

Only 11% of women have Lipoedema, and they're often mistaken for simply being overweight or obese...which is NOT the case. I finally had a female doctor listen to my concerns and who sent me for a diagnosis. The male doctor I had previously totally dismissed my concerns that something was terribly wrong with my lower limbs. Needless to say, I dropped the male doctor and am grateful I found a female doctor who at least investigated my concerns and discovered that I had a rare, incurable, genetic disease.

And thanks to the ACA (and President Obama), I was able to get the diagnosis, compression garments, and MLD therapy I needed.