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Tuesday, June 27, 2017

The (lipedema) woes of summer

I'm not a fan of summer. I don't care for hotter weather in the first place, but my lipedema appears to get worse during the summer months. :(

Tuesday, March 14, 2017

Be sure to stop by and like the official Lippy Legs & All Facebook page


Please drop by the official FB page for my upcoming book release, LIPPY LEGS & ALL – MY LIFE WITH LIPEDEMA.

On the official FB page, I will share excerpts from my book in addition to articles, blog posts, infographics, and other information about Lipedema (also known as Lipoedema) to spread awareness about this genetic (and currently incurable) disease.

The information I share on the page is essential knowledge for women who suspect they might have Lipedema or women who have already been diagnosed with the disease and are looking to discuss with others how it affects their lives on many levels – physical, mental, emotional, and spiritual.


I look forward to having a dialogue with others about Lipedema and hope you will feel comfortable sharing comments, viewpoints, personal stories and other related information on this page. Don't be afraid to ask questions, either. That's how all of us learn together!

I hope you will join me there. This is a cause I am passionate about because there are women who may have no idea they have Lipedema. It's imperative that more people become aware and educated about this condition because one of your loved ones may need treatment for this disease.




Without health insurance through the ACA, managing my Lipedema will become more difficult

Here is a before and after shot of how my legs looked prior to having compression garments and Manual Lymph Drainage (MLD) at the physical therapy dept. at Penrose-St. Francis Hospital. My physical therapist is Lil and she's been working with Lipedema patients for over 20 years.

Unfortunately, with the impending rollback of the Affordable Care Act, it's likely that I will lose my health insurance and will no longer be able to have this physical therapy, meaning that my Lipedema will continue to progress. 

I was so happy to get treatment and to think I may be without it again worries me. It took me years to get a diagnosis and I was so relieved that I could begin treatment. But now it feels like soon I'll be back to square one again. 

Before MLD and compression stockings
After MLD and compression stockings


Sunday, March 12, 2017

[Updated] Coming August 10, 2017: Lippy Legs & All – My Life with Lipedema

Scheduled for August 10, 2017 release.
You can pre-order your copy from the publisher here:
https://www.smashwords.com/books/view/710509

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For years, I watched as my calves legs grew larger, bruised easily, and became more painful. Even bumping against a chair or the corner of a wall would send shockwaves of pain through my calves and leave me with huge bluish-purple bruises.

I knew something was wrong, but what could it be? I thought it was a simple case of edema or general swelling, but keeping my legs elevated and taking diuretic pills had no effect. In fact, they only became worse.

In 2014, after several attempts to locate a physician who would help me figure out what was wrong, I was lucky enough to get a diagnosis. I had Lipedema, a genetic disease I'd never heard of before. It's a mystery disease with no known cure thus far.

Not widely discussed, Lipedema is rare and only affects about 11% of women. Few doctors are able to recognize the symptoms, nor have they been exposed to information about the condition and how it relates to the all-important lymphatic system.

LIPPY LEGS & ALL is the story of my life (thus far) with Lipedema. I'll discuss, in detail, what I've learned about the disease, how it's permanently changed me both physically and mentally, and why I'm determined to bring awareness to this condition so women who may suffer from Lipedema can get the essential diagnosis and treatment they deserve.

Without a proper diagnosis, treatment, and rehabilitation, a Lipedema sufferer can face a bleak future of wheelchair-bound immobility or, worse yet, amputation of their limbs. No woman deserves either of those things; if I can cast a wider spotlight on Lipedema through the publication of this book, I will.